Congenital heart disease (CHD) is a condition that affects 1 in every 100 babies born in the United States. It is a defect in the structure or function of the heart that is present at birth.

While some cases are mild and require no treatment, others are more serious and can be life-threatening.

For children with CHD and their families, navigating the medical system, coping with ongoing treatments, and dealing with the emotional challenges of the condition can be overwhelming. That’s where Beating Hearts comes in.

What is Beating Hearts?

Beating Hearts is a gathering for children with congenital heart disease and their families. It is a safe, supportive environment where families can connect with each other, share experiences, and learn more about the condition.

The gathering is organized by CHD parents who understand the unique challenges of the condition and want to help other families in similar situations.

Who Can Attend Beating Hearts?

Beating Hearts is open to any family impacted by congenital heart disease. This includes children with CHD, their siblings, parents, grandparents, and other relatives.

The gathering is also open to medical professionals who are interested in learning more about CHD or who work with children with CHD.

What Happens at Beating Hearts?

Beating Hearts is a one-day event that includes a variety of activities and educational sessions. Families can connect with each other, share their experiences, and learn more about the condition.

Some of the activities that take place at Beating Hearts include:.

Guest speakers who share their expertise on various aspects of CHD
Breakout sessions for parents to connect and share resources
Games and activities for children with CHD and their siblings
A resource fair featuring vendors who provide services and support for families with CHD

The gathering is designed to be both educational and fun, with activities for children and parents alike.

Families can learn more about CHD, connect with other families who understand what they’re going through, and have some fun together in a stress-free environment.

Why is Beating Hearts Important?

While there are many resources available for families of children with CHD, there are few opportunities for families to connect with each other in person.

Beating Hearts provides a safe, supportive environment for families to connect and share their experiences. It also provides families with access to resources and information that can help them navigate the medical system and cope with the unique challenges of CHD.

Additionally, Beating Hearts helps to raise awareness of CHD and the impact it has on children and families.

By bringing together families, medical professionals, and community members, Beating Hearts helps to shine a light on this important issue and encourages others to get involved.

How Can You Get Involved?

If you’re interested in attending Beating Hearts, you can find more information on their website or social media pages. You can also reach out to the organizers directly to learn more about upcoming events.

If you’re unable to attend but still want to support the organization, there are many ways to get involved. You can make a donation, volunteer your time, or spread the word about the organization to your friends and family.

Every little bit helps to support this important cause and make a difference in the lives of children with CHD and their families.

Conclusion

Beating Hearts is an important resource for families impacted by congenital heart disease. It provides a safe, supportive environment for families to connect, learn, and have some fun together.

Whether you’re a family member of a child with CHD, a medical professional, or just someone who wants to make a difference, there are many ways to get involved and support this important cause.