Multiple sclerosis, or MS, is a chronic autoimmune disease that primarily affects young adults but can also develop in children. While it’s rare for children to develop MS, studies show that it’s becoming increasingly common.

Like adults, children with MS experience a wide range of symptoms, including fatigue, weakness, vision disturbances, and cognitive impairment. Unfortunately, there are many challenges unique to children with MS that make it difficult to diagnose and treat.

In this article, we’ll explore the biggest threats to MS in children and what parents can do to protect their children’s health.

1. Delayed Diagnosis

The biggest threat to MS in children is a delayed diagnosis. Because MS is so rare in children, doctors often misdiagnose it as other conditions, such as viral infections, migraines, or epilepsy.

This can delay treatment and increase the risk of permanent neurological damage. Additionally, children with MS may have different symptoms than adults, such as seizures or behavioral changes, which can make it even harder to diagnose.

Parents can help by being informed about MS and advocating for their children. If your child has unexplained symptoms, talk to their doctor about the possibility of MS. Don’t be afraid to get a second opinion if necessary.

2. Lack of Pediatric Specialists

Another threat to MS in children is the limited availability of pediatric specialists. Because MS is so rare in children, there are very few doctors who specialize in diagnosing and treating it.

This can make it difficult for parents to find the right care for their children.

If you suspect that your child has MS, it’s important to find a specialist who has experience treating children with the condition. You can ask your child’s doctor for a referral or contact a local MS center for recommendations.

3. Limited Treatment Options

While there are treatments available for MS, many of them are not approved for use in children. This can limit the options for treating children with MS and increase the risk of long-term disability.

However, there are treatments that are approved for use in children with MS, such as interferon beta-1a and glatiramer acetate.

It’s important for parents to work closely with their child’s doctor to find the right treatment plan for their child.

4. Impact on Quality of Life

MS can have a significant impact on a child’s quality of life. Children with MS may experience fatigue, cognitive impairment, and physical limitations that can affect their ability to participate in activities and socialize with friends.

They may also experience depression and anxiety, which can further impact their quality of life.

Parents can help by supporting their children and finding ways to help them stay engaged and active. This might involve finding adaptive activities that accommodate physical limitations or connecting with other families who have children with MS.

5. Financial Burden

The cost of treating MS can be high, and this can be a significant burden for families. Even with insurance, co-pays and deductibles can add up quickly, and some treatments may not be covered at all.

This can make it difficult for families to afford the care their children need.

Parents can explore resources that may be available to help with the cost of care, such as patient assistance programs, government assistance programs, and non-profit organizations that provide financial support for families with children with chronic illnesses.

6. Limited Research

Because MS is so rare in children, there is limited research on the condition and how it affects children specifically. This can make it difficult for doctors to make informed decisions about diagnosis and treatment.

Parents can help by participating in clinical trials and research studies when possible. This can help advance our understanding of the condition and improve outcomes for future generations.

7. Emotional Impact

MS can be emotionally challenging for children and their families. Children with MS may feel isolated or stigmatized, and parents may feel overwhelmed and uncertain about how to best support their child.

Parents can seek out support from other families with children with MS or connect with a mental health professional who has experience working with families with chronic illnesses.

8. Lack of Public Awareness

Finally, the lack of public awareness about MS in children can be a significant threat. Many people are unaware that children can develop MS, which can lead to a lack of understanding and support for families with children with the condition.

Parents can help raise awareness by sharing their stories and advocating for their children. This can help break down stigmas and increase understanding of the challenges faced by families with children with MS.

Conclusion

MS is a challenging and complex condition that can be especially difficult for children and their families. Parents can help protect their children’s health by being informed, advocating for their children, and finding the right care.

While MS presents many challenges, there are resources available to help families navigate the condition and improve outcomes for their children.