Parkinson’s disease is a neurodegenerative disorder that affects the dopamine-producing neurons in the brain. It affects over 10 million people worldwide, and symptoms usually start to appear after the age of 60.
Although it is currently incurable, there are treatments available that can help alleviate the symptoms. For those living with Parkinson’s disease, every day can be a challenge. Here is a look at what a typical day might look like for a Parkinson’s patient.
Waking Up
For many Parkinson’s patients, one of the most frustrating things about the disease is the difficulty in getting a good night’s sleep.
Restless leg syndrome, a common symptom of Parkinson’s, can make it difficult to fall asleep and stay asleep. Even after a good night’s rest, it can take a while for a Parkinson’s patient to fully wake up due to the stiffness and rigidity caused by the disease.
Getting Dressed
Simple tasks such as getting dressed can become a major challenge for Parkinson’s patients. The stiffness and rigidity caused by the disease can make it difficult to move, and tremors can make it hard to fasten buttons or tie shoelaces.
Many Parkinson’s patients find it helpful to wear clothes with Velcro or slip-on shoes to make getting dressed easier.
Medications
Most Parkinson’s patients take medication to help manage their symptoms. These medications need to be taken at specific times throughout the day, and missing a dose can make the symptoms worse.
Parkinson’s patients must also be careful not to take their medication with foods that contain protein, as this can interfere with the body’s ability to absorb the medication.
Breakfast
Many Parkinson’s patients struggle with eating due to the tremors and difficulty swallowing caused by the disease. Some patients may find it helpful to eat smaller, more frequent meals throughout the day rather than three large meals.
Others may need to have their food pureed or chopped into small pieces to make it easier to swallow.
Exercise
Exercise is essential for Parkinson’s patients to help maintain their mobility and balance.
Some patients may have difficulty with certain types of exercise and may need to work with a physical therapist to find exercises that work for their specific needs.
Out and About
Going out in public can be a source of anxiety for Parkinson’s patients. The tremors and other symptoms of the disease can be embarrassing, and some may worry about being stared at or judged by others.
This social stigma can be one of the most challenging aspects of living with Parkinson’s.
Meals and Medications
Throughout the day, Parkinson’s patients must continue to take their medication at specific times. They must also be mindful of what they eat, as certain foods can interfere with the absorption of their medication.
This can make it difficult to plan meals or eat out at restaurants.
Bedtime
The stiffness and tremors caused by Parkinson’s can make it difficult to get comfortable in bed. Restless leg syndrome can also make it difficult to fall asleep.
Many Parkinson’s patients find it helpful to establish a bedtime routine to help them relax and prepare for sleep.
Coping with Parkinson’s Disease
Despite the challenges of living with Parkinson’s, many patients find ways to cope and adapt to their new way of life.
Support groups and therapy can be helpful for patients and their families, providing a safe space to share their experiences and feelings. Finding activities and hobbies that bring joy and fulfillment can also be beneficial for Parkinson’s patients, helping them to maintain a sense of purpose and identity beyond their diagnosis.
Living with Parkinson’s disease is not easy, but with the right treatment and support, patients can live a fulfilling life.
By understanding the challenges and struggles that Parkinson’s patients face on a daily basis, we can work to create a more inclusive and understanding society for those living with this disease.